Study Forms and Documents

see below for "instructions"

• Family Flyer (1 MB pdf file, please be patient)
• Family Flyer where proband is adult
• Surgeon's Workflow Diagram as high quality VML OR as .GIF
• Recurrent Respiratory Papillomatosis Genetic Susceptibility Worksheet
• Parent's Questionnaire
• Questionnaire for Patient if Adult-Onset
• Parent's Questionnaire in Spanish
• Privacy Envelope for Questionnaire
• Annual Clinical Update Form
• Collecting Specimens and Shipping Directions
• International Issues
• NIH Grant Application (Research Plan)
• NIH Progress Report (most recent)
• NIH Enrollment Report (most recent)
• IRB Approval for the Center for Genomic Sciences (your IRB may ask for this)
• IRB Education Certification for Dr. Buchinsky, for Dr. Post and for Dr. Donfack

Satellite Centers

Baylor College of Medicine

Children's Healthcare of Atlanta at Egleston

Children's Hospital of Alabama

Children's Hospital of Philadelphia

Children's Hospital of Pittsburgh

Children's Hospital of the King's Daughters, Norfolk VA

Children's Hospital of Wisconsin

Children's Hospital, San Diego

Children's Hospital, Seattle

Children's Medical Center of Dallas

Children's National Medical Center, Washington DC

Cincinnati Children's Hospital

Drexel University College of Medicine, Philadelphia, PA

Hospital for Sick Children - Toronto

Johns Hopkins

Le Bonheur Children's Medical Center, Memphis, TN

Primary Children's Medical Center, Salt Lake City, UT

Rainbow Babies & Chil's - Cleveland

St. Louis Children's Hospital

SUNY Upstate Medical Center, Syracuse, NY

Temple University Children’s Medical Center, Philadelphia

University of California - San Francisco

University of Florida - Gainesville

Yale-New Haven Children's Hospital

Instructions

Please right-click on the above links and then select "save target as..."

The Worksheet, Questionnaire and Envelope were created with ScanSoft OmniForm. The files have been posted as "executable mailable fillers." The bottom line is that you should download the file and then run it - all will be revealed.

Enrollment Statistics

On April 2, 2008: 283 patients (+ parents)

Graph of Date vs. Running Total

Enrollment by Institution